Full Citation

Title: Cohort Profile: The National Academy of Sciences-National Research Council Twin Registry (NAS-NRC Twin Registry)

Citation Type: Journal Article

Publication Year: 2015

ISBN:

ISSN: 14643685

DOI: 10.1093/ije/dyu181

NSFID:

PMCID: PMC4521123

PMID: 25183748

Abstract: The National Academy of Sciences-National Research Council Twin Registry\n(NAS-NRC Twin Registry) is a comprehensive registry of White male twin\npairs born in the USA between 1917 and 1927, both of the twins having\nserved in the military. The purpose was medical research and ultimately\nimproved clinical care. The cohort was assembled in the early 1960s with\nidentification of approximately 16 000 twin pairs, review of service\nrecords, a brief mailed questionnaire assessing zygosity, and a health\nsurvey largely comparable to questionnaires used at that time with\nScandinavian twin registries. Subsequent large-scale data collection\noccurred in 1974, 1985 and 1998, repeating the health survey and\nincluding information on education, employment history and earnings.\nSelf-reported data have been supplemented with mortality, disability and\nmedical data through record linkage. Potential collaborators should\naccess the study website\n{[}http://www.iom.edu/Activities/Veterans/TwinsStudy.aspx] or e-mail the\nMedical Follow-up Agency at {[}Twins@nas.edu]. Questionnaire data are\nbeing prepared for future archiving with the National Archive of\nComputerized Data on Aging (NACDA) at the Inter-University Consortium\nfor Political and Social Research (ICPSR), University of Michigan, MI.

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Authors: Gatz, Margaret; Harris, Jennifer R.; Kaprio, Jaakko; McGue, Matthew; Smith, Nicholas L.; Snieder, Harold; Spiro, Avron; Butler, David A.

Periodical (Full): International Journal of Epidemiology

Issue: 3

Volume: 44

Pages: 819-825

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